Hypertrophic Cardiomyopathy Patient Tools

The Preventive Cardiovascular Nurses Association has developed this series of Hypertrophic Cardiomyopathy patient tools and handouts for nurses and health care providers to use with patients. PCNA also has Hypertrophic Cardiomyopathy provider tools and continuing education courses for providers to learn more about this most common form of inherited heart disease.

HCM Patient Education _ENGLISH_Page_1

Hypertrophic Cardiomyopathy: What You Need to Know

Patient Handout

This hypertrophic cardiomyopathy patient tool will assist health care providers, their patients and families understand hypertrophic cardiomyopathy (HCM) including symptoms and treatment.

This tool includes:

  • Definition and causes of HCM
  • How HCM affects the heart
  • Common symptoms
  • Diagnostic tests
  • Management and treatment
  • How HCM may affect your family

Reviewed October 2023

English

Supported by Bristol-Myers Squibb.

Hypertrophic Cardiomyopathy Video: What every patient should know

Hypertrophic Cardiomyopathy (HCM) is the most common genetic heart disease in the United States,2 with 1 in 500 (0.2%) diagnosed with the condition worldwide.  Up to 95% of people with HCM have not been diagnosed and do not know they have it.

This video includes:

  • Description of HCM
  • Signs and Symptoms to look for
  • Reasons to talk to your doctor

Reviewed July 2023

HCM-Patient-Poster_FINAL

Hypertrophic Cardiomyopathy: Is Your Heart Holding You Back?

Poster

This tool will prompt patients, families, and caregivers to learn more about HCM (e.g., signs and symptoms), engage in conversation with their provider about HCM, and to help guide the clinical conversation about HCM.

The poster may have many utilizations and is recommended to be posted in the exam room in view of patients and caregivers. Also included is a QR Code linked to a short video on HCM.

This tool includes:

  • Prevalence of HCM
  • What is HCM
  • Signs and Symptoms
  • Next Steps
  • Link to video to learn more

Reviewed October 2023

Free to download (login required)

Supported by Bristol-Myers Squibb.

Hypertrophic Cardiomyopathy Infographic: What every patient should know

This tool will prompt patients, families, and caregivers to learn more about HCM (e.g., signs and symptoms), engage in conversation with their provider about HCM, and to help guide the clinical conversation about HCM.  Common myths about HCM will be clarified.

This tool includes:

  • HCM Description
  • Myth versus Reality of HCM information
  • Topics to discuss with your care team
  • A QR code link to more patient resources

Supported by Bristol-Myers Squibb.